Getting Back to Normal

Wow its hard to believe our life is getting back to normal after Taylor's 3 weeks out of school! It makes me realize what we take for granted when things aren't "normal". Taylor got her cast off last Friday and Robin has been working with her to get movement back into arm. Taylor has been doing good at school and she has been wearing an ace bandage while she is there.

Thank you to everyone who has been praying for her! Prayers really do work!!!!!

6th Pacemaker

Taylor's 6th pacemaker procedure was on March 30, 2009. Our day started out long as of course she couldn't eat and Robin and I both didn't eat because it wasn't fair to her. We got to the hospital and things were going pretty good until they tried to put an IV in. They blew 2 veins in a matter of minutes and Taylor was SCREAMING because it hurt so badly. Luckily Dr. Bryant came in and told the nurse that they could just put an IV in her hand once she got to the cath lab. What huge relief! Then to our surprise we got to walk down to the cath lab with Taylor. She got to pick one parent to go in the cath lab with her until she went to sleep. Of course the little girl chose her daddy! Robin had to put a mask and hat on when he entered the room and he stood by her bed and held her hand while she went to sleep. Robin and I were crushed to see her on a table for the 10th time in her 7 years of life.


A couple of hours later we went up to her room and as they brought her to her room, she was in pain. Nothing hurts more than to see your child and pain and there is nothing you can do. It crushed me but I had to continue tell her that it was going to be ok. It kills me that knowing this child just had surgery; they don't bother giving pain medicine until they are awake and crying. If Taylor was any other kid we would have gotten to go home but because Taylor has a history of infections we had to stay over night so she could get 4 doses of IV antibiotics.

The next morning was quite eventful! At 8 am, Taylor was getting an EKG and Dr. Bryant was waiting for her down in the echo room so he could do an echo and check her pacemaker. By 10 o'clock we were on our way home! Yay! I was so relieved that we finally had a pacemaker put in and we had no problems.

I was relieved too soon! Today we are headed back to Jacksonville for them to drain a fluid sac that has formed at her pacemaker pocket. The poor baby! She was in the bathroom crying and was asking why bad things always had to happen to her! I just wanted to cry!

I will update everyone once they drain the sac. My question is…can that fluid turn into an infection?