A Year Later

Well, its a year since Taylor started "thumping" and lets just say this has been a long year. In July, August, and September we went to Shands a lot to try and figure this whole thumping thing out. We did have an awesome Medtronic Rep, Cheryl, that did come to Tallahassee so poor Taylor wouldn't have another trip down there. Anyway, the thumping is being caused from the RV lead that has been in her, then 7 years. They had to turn the power all the way down on the RV lead to stop the thumping, which worked for a few months.

At the end of December Taylor said, "mommy, I'm thumping again!" I couldn't believe it. We were doing so good and now she starts again. The thumping slowly got a little worse so Shands had to adjust the power on the LV lead. Taylor has gone from 3 leads making her heart working properly to now 2 out of the 3 leads having issues. The LV lead doesn't always send the message from the pacemaker to the heart to tell it squeeze like it should. They kept playing with the voltage on the pacemaker to try to find a happy medium. If they adjusted it to high she would thump worse and they can't adjust to low then the pacemaker won't be in its "safety threshold".

For a little over a month the doctors have been trying to figure out what is best for Taylor but what isn't going to jeopardize her life. After Dr. Bryant (in Jacksonville) and Dr. Cecchin (in Boston) talked they have decided that they will keep a close eye on Taylor and make sure that the LV lead stays working properly and see how much time we can buy Taylor before she has to have her pacemaker replaced.

I am relieved to hear that we can post-pone surgery but I made sure that they remember that Taylor doesn't do ANYTHING the way she is suppose too. She loves to keep them on their toes! Anyway, I know Taylor will let me know if she starts feeling the thumping more and I know she is in good hands.

Thank you Dr. Fricker for putting up with all my e-mails and phone calls!!! We love you!