Since June 2009, Taylor has been dealing with her thumping on and off as the leads have gotten worse and settings to the pacemaker have changed to compensate with the leads. We finally got word that Taylor will be having surgery on December 6th to replace the leads that she has had for 9 years and her pacemaker she got in March of 2009. The new leads will hopefully be put in her heart so she will have a better connection and have hopes that the pacemaker could possibly be our 10 YEAR pacemaker. Having a 10 year pacemaker would be a HUGE improvement as she has her 6th pacemaker now and she is 9! Of course as a mom I don't want my kid to go through surgery yet again but to hear her say her heart hurts, that it feels like someone is kicking her in the chest and that she is thumping again is something I could live without. I really hope all of this goes away after surgery because I am tired of feeling helpless and telling her I'm sorry but there is nothing I can do. I want Taylor to have as normal of a childhood as she can being a heart kid and not have to have distractions all the time with the pacemaker hurting her or causing her to thump. Taylor is actually happy that she will be having surgery for this stop. I've wondered if she really knows whats going to happen and I think she does. Her only request is that the IV goes in AFTER they put her to sleep so I will try to do my best to have her wish come true.
As of now Taylor will have pre-op on December 5th and then surgery on the 6th. The big question is when will she get to go home and that question is huge especially with Taylor and her history of doing things the hard way and keeping the doctors on their toes and curious as to what is going on. If all goes well I hope we come home after 4 to 5 days and she will be home bound from school probably till about mid-January so she can have plenty of time to heal.
I ask for prayers as we prepare for surgery number 12 and pacemaker number 7. I know she will be in good hands but I just pray that she stays strong and continues to fight this battle that she has fought so hard for the past 9 years. I love you Taylor Madison!
